PICU CDS Redesign:
Reducing Diagnostic Error in the PICU

Overview
Exploring challenges in the pediatric intensive care unit through a research project aimed at reducing diagnostic errors and enhancing patient care. This initiative is part of 4-year research grant in collaboration with The Live Well Collaborative, Cincinnati Children's Hospital, Harvard Medicine, and Boston Children's Hospital.
My Role
User Research
Journey Maps
SME Interviews
Field Studies
Insight Analysis
Timeline
Jan - Aug
2024
    Client

    Project Background

    Why is Reducing Diagnostic Error in the Pediatric Intensive Care Unit (PICU) Important?
    Children in the PICU are uniquely vulnerable to diagnostic errors due to their inability to articulate symptoms, varying clinical presentations, and the high stakes of clinical action or inaction. Diagnostic errors affect 12% of high-risk PICU patients, leading to harm in 60% of their cases. These errors are often linked to diagnostic uncertainty and atypical presentations upon admission.

    Team

    As part of the Live Well Collaborative, I collaborated with a multidisciplinary team of 12, including physicians, nurses, professors, and students, working closely with Cincinnati Children's Hospital.
    Live Well Collaborative
    Linda Dunseath
    Executive Director
    Bain Butcher, MD, MFA
    Faculty Lead
    Anabel Graciela
    Senior UX Fellow
    Harrison Smith
    UX Research Co-op
    Davis Her
    Industrial Design Co-op
    Evan Pugh
    Graphic Design Co-op
    Cincinnati Children's Team
    Maya Dewan, MD
    Principal Investigator
    Matthew Zackoff, MD
    Co-Principal Investigator
    Daniel Loeb, MD
    Research Coordinator
    Kelly Collins
    Pediatric Fellow
    Korina Ortega
    Assoc. Professor
    Kyesha James
    Pediatrics Professor

    Research Goals

    Primary
    Identify challenges and pain points in PICU workflow
    Secondary
    Uncover data gaps during diagnosis events to improve decision-making
    Lastly
    Test and analyze CDS tools through VR sims and real-world feedback

    Methods

    Field Studies and Observational Analysis
    Over the course of 18 hours and 3 sessions, we shadowed doctors, nurses, and respiratory therapists to observe the intricacies of PICU workflows in real-time. Participated in 2 CODE simulations to analyze how medical teams communicate, share information, and coordinate to diagnose and develop effective care plans.
    In-Depth Interviews
    Conducted 13 interviews across five distinct PICU roles to uncover workflows, communication systems, and pain points during key activities such as rounds, hand-offs, and huddles. Expanded research to include patient perspectives by interviewing a former PICU patient turned advocate and a parent of a long-term critical care patient, gaining valuable insights into both clinical workflows and personal experiences within the PICU.
    Journey Mapping the PICU
    Through interviews and observations, we mapped the interactions among PICU team members, uncovering communication methods, challenges, and opportunities to reduce diagnostic uncertainty.
    Failure Mode and Effects Analysis (FMEA)
    Developed an FMEA to identify potential failure modes and successes in PICU admission processes, covering unscheduled non-emergent, unscheduled emergent, scheduled non-emergent, outside hospital transfers, and CODE admissions.
    VR Simulation Observation
    Utilized a digital-twin VR simulation to observe how primary care facilitators (PCFs), registered nurses (RNs), and respiratory therapists (RTs) perform during a diagnosis-intensive event. Each simulation involved diagnosing a baby with an abdominal protrusion and was standardized across participants. This setup allowed us to analyze how each role accesses and communicates critical information. The findings will inform future testing of CDS tool prototypes in the same simulated environment.

    Insights

    CDS Tool Design Requirements
    By testing existing CDS tools in a VR environment and mapping how each role typically gathers information, we identified key patterns in tool usage. This enabled us to generate hypotheses about the optimal placement and role-specific access of CDS features. These insights were then synthesized into actionable design requirements for the development of their new tool.
    Failure Modes and Opporunity Areas
    Through 8 months of research, we uncovered 65+ unique pain points and ideated specific solutions for each. Through intensive analysis and synthesis, we were able to boil it down into 5 failure modes and opportunity areas.
    Educational Animations
    Developed informational animations to provide a deeper understanding of the PICU: one outlines a typical day, another details teamwork during a CODE, and the last explores patient-care team dynamics. Originally created to onboard future Live Well Collaborative teams, Cincinnati Children's Hospital will also use them to onboard new nurses and RTs.

    Next Steps

    As part of a 4-year research grant, The Live Well Collaborative contributed to initial research and later usability testing. Our role began with ideating and defining the vision for the new CDS tool. The development and grant teams will now use our findings to create multiple prototypes tailored to different use cases. Live Well Collaborative will reengage in two years to test and validate the new tools using our original data.

    Lessons Learned

    Newness to Medical Field
    Quickly adapted by prioritizing functional literacy, collaborating closely with medical professionals and PICU staff, and seamlessly integrating new knowledge into research methodologies.
    Variability in the PICU
    Prioritized structured organization, utilized visualizations, and focused on interactions with medical professionals to maintain accuracy.
    Information management
    Implemented data management and communication strategies to improve interdisciplinary collaboration and streamline decision-making.
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